Validation of a methodology for the care of patients with genodermatosis using the Delphi method

Abstract

Introduction: Genodermatoses are genetic diseases with involvement of the skin and its adnexa. A scientific consensus is needed to allow diagnostic, therapeutic and preventive actions to be developed in the care of these patients.

Objective: To support the validation of a methodology for the care of patients with genodermatosis.

Methods: Qualitative and quantitative innovation and development research was carried out. The Delphi method was applied as a technique for consulting experts, for which a group of 30 Cuban specialists from the specialties of dermatology, clinical medical genetics and pediatrics, with a high scientific level and experience in working with patients with genodermatosis, was consulted. The recommendations and criteria of the experts, after the consultation rounds had been carried out, formed the basis for developing the methodology for the care of patients with genodermatosis. In the final phase, the assessment was requested in terms of the relevance, relevance and contributions of the results. To evaluate the reliability of the instrument, the mean and standard deviation were used, and to test the level of agreement between them, Kendall's coefficient was used.

Results: In the second round, the experts agreed that the instrument was very adequate, with means of 27 (SD=3.7416575) and a Kendall coefficient of 0.9, and consensus was reached among the experts.

Conclusions: The experts' criteria allowed the development of a methodology for the care of patients with genodermatoses and its validation using the Kendall coefficient of 1.0.